Scott Kim, MD, PhD



Selected Publications:

The public's approach to surrogate consent for dementia research: Cautious pragmatism
De Vries R, Ryan K, Stanczyk A, Appelbaum PS, Damschroder LJ, Knopman D, Kim SY. American Journal of Geriatric Psychiatry 2012. In Press.

Analysis of informed consent document utilization in a minimal-risk genetic study
Desch K, Jun L, Kim SY, Laventhal N, Metzger K, Siemieniak D, Ginsburg D. Annals of Internal Medicine 2011;155:316-22.

Measuring how people view biomedical research: A reliability and validity analysis of the Research Attitude Questionnaire
Rubright JD, Cary MS, Karlawish JH, Kim SY. Journal of Empirical Research on Human Research Ethics 2011;6(1):63-68.

Contracts with patients in clinical practice
Volk M, Lieber SR, Kim SY, Ubel P, Schneider CE. Lancet 2011.

Preservation of the capacity to appoint a proxy decision maker: Implications for dementia research
Kim SY, Karlawish JH, Kim HM, Wall IF, Bozoki AC, Appelbaum PS. Archives of General Psychiatry 2011;68:214-219.

Longitudinal consent-related abilities among research participants with schizophrenia: Results from the CATIE study
Stroup TS, Appelbaum PS, Gu* H, Hays S, Swartz MS, Keefe R, Kim SY, Manschreck T, Boshes R, McEvoy JP, Lieberman J. Schizophrenia Research 2011;130:47-52.

Analysis of informed consent document utilization in a minimal-risk genetic study
Desch K, Lii J, Kim SY. Annals of Internal Medicine 2011;155:316-22.

A framework for assessing the quality of democratic deliberation: Enhancing deliberation as a tool for bioethics
De Vries R, Stanczyk A, Ryan K, Kim SY. Journal of Empirical Research on Human Research Ethics 2011.

How informed is informed consent? Analysis of informed consent document utilization in minimal risk research
Desch K, Lii J, Kim SY, Laventhal N, Metzger K, Siemieniak D, Ginsburg D. Annals of Internal Medicine 2011. In Press.

Effect of public deliberation on attitudes toward surrogate consent for dementia research
Kim SY, Kim HM, Knopman D, De Vries R, Damschroder L, Appelbaum PS. Neurology 2011. In Press.

Longitudinal consent-related abilities among research participants with schizophrenia: Results from the CATIE study
Stroup TS, Appelbaum PS, Guu H, Hays S, Swartz MS, Keefe R, Kim SY, Manschreck T, Boshes R, McEvoy JP, Lieberman J. Schizophrenia Research 2011. In Press.

The ethics of informed consent in Alzheimer disease research
Kim SY. Nature Reviews Neurology 2011;7:410-414.

Disclosing individual CDKN2A research results to melanoma survivors: Interest, impact, and demands on researchers
Christensen K, Roberts J, Shalowitz DI, Everett J, Kim SY, Raskin L, Gruber SB. Cancer Epidemiology, Biomarkers and Prevention 2011;20(3):522-529.

Variability of judgments of capacity: Experience of capacity evaluators in a study of research consent capacity
Kim SY, Appelbaum PS, Kim HM, Wall IF, Bourgeois JA, Frankel B, Hails KC, Rundell JR, Seibel KM, Karlawish JH. Psychosomatics 2011;52:346-353.

Deliberative assessment of surrogate consent in dementia research
Kim SY, Uhlmann RA. Alzheimer's & Dementia 2010;6(4):342-50.

Advance directives and outcomes of surrogate decision making before death
Kim SY, Silveira MJ, Langa KM. New England Journal of Medicine 2010;362(13):1239-40.

Returning individual research results: Development of a cancer genetics education and risk communication protocol
Roberts JS, Shalowitz DI, Christensen K, Everett J, Kim SY, Raskin L, Gruber SB. Journal of Empirical Research on Human Research Ethics 2010;5(3):17-30.

Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research
De Vries R, Stanczyk A, Wall IF, Uhlmann RA, Damschroder L, Kim SY. Social Science and Medicine 2010;70(12):1896-1903.

Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research
De Vries R, Stanczyk A, Wall IF, Uhlmann RA, Damschroder L, Kim SY. Social Science and Medicine 2010.

Pdf

Assessing the public's views in research ethics controversies: Deliberative democracy and bioethics as natural allies
Kim SY, Wall IF, Stanczyk A, De Vries R. Journal of Empirical Research on Human Research Ethics 2009;4:3-16.

Pruning the regulatory tree
Kim SY, Ubel PA, De Vries R. Nature 2009;457:534-535.

Surrogate consent for dementia research: A national survey of older Americans
Kim SY, Kim HM, Langa K, Karlawish JH, Knopman D, Appelbaum PS. Neurology 2009;72:149-155.

Can a moral reasoning exercise improve response quality to surveys of healthcare priorities?
Johri M, Damschroder LJ, Zikmund-Fisher BJ, Kim SY, Ubel PA. Journal of Medical Ethics 2009;35(1):57-64.

Bioethics and the sociology of trust: introduction to the theme
De Vries R, Kim SY. Medicine, Health Care, and Philosophy 2008;11(4):377-379.

The views of Alzheimer disease patients and their study partners on proxy consent for clinical trial enrollment.
Karlawish JH, Kim SY, Knopman D, van Dy, James BD, Marson D. American Journal of Geriatric Psychiatry 2008;16(3):240-247.

Trends in the prevalence and mortality of cognitive impairment in the United States: 1993-2004.
Langa K, Karlawish JH, Larson EB, Cutler DM, Kabeto MU, Kim SY, Hu HM, Rosen AB. Alzheimer's & Dementia 2008;4(1):.

Ethics of sham surgery: Perspective of patients.
Frank S, Wilson R, Holloway RG, Zimmerman C, Peterson DR, Kieburtz K, Kim SY. Movement Disorders 2008;23:63-8.

Determining when impairment constitutes incapacity for informed consent in schizophrenia research.
Kim SY, Leibovici A, Lamberti JS, Jeste DV, Goff DC, McEvoy JP, Stroup S, Swan JG, Appelbaum PS, Caine ED. British Journal of Psychiatry 2007;191:38-43.

Assessing and communicating risks and benefits of gene transfer clinical studies.
Kim SY. Current Opinion in Molecular Therapeutics 2006;8:384-389.

The capacity to appoint a proxy and the possibility of concurrent proxy directives.
Kim SY, Appelbaum PS. Behavioral Sciences and the Law 2006;24:469-478.

Do clinicians follow a risk-sensitive model of capacity determination? An experimental video survey.
Kim SY, Caine ED, Swan JG, Appelbaum PS. Psychosomatics 2006;47:325-329.

How does news about suicidality and antidepressants affect patients being treated for depression?
Muroff JR, Kim SY. Psychiatric Services 2006;57:723-724.

Volunteering for early phase gene transfer research in Parkinson's disease.
Kim SY, Holloway RG, Frank S, Beck CA, Zimmerman C, Wilson R, Kieburtz K. Neurology 2006;66:1010-1015.

Appointing a proxy for research consent after one develops dementia: The need for further study.
Kim SY, Kieburtz K. Neurology 2006;66:1298-1299.

Competency for creation, use, and revocation of psychiatric advance directives.
Srebnik DS, Kim SY. Journal of the American Academy of Psychiatry Law 2006;34:501-510.

Decision-making capacity for research participation among individuals in the CATIE schizophrenia trial.
Stroup S, Manschreck T, Keefe R, Kim SY, Jeste DV, Davis S, Patel M, Swartz M, Appelbaum PS, McEvoy JP, Lieberman J. Schizophrenia Research 2005;80:1-8.

What do people at risk for Alzheimer's disease think about surrogate consent for research?
Kim SY, Kim HM, McCallum C, Tariot PN. Neurology 2005;65:1395-1401.

Is psychiatric research stigmatized? An experimental survey of the public.
Kim SY, Muroff JR, Hoerauf SL. Schizophrenia Bulletin 2005;32:129-136.

When does decisional impairment become decisional incompetence? Ethical and methodologial issues in capacity research in schizophrenia.
Kim SY. Schizophrenia Bulletin 2005;32:92-97.

Science and ethics of sham surgery: A survey of Parkinson disease clinical researchers.
Kim SY, Frank S, Holloway RG, Zimmerman C, Wilson R, Kieburtz K. Archives of Neurology 2005;62:1357-1360.

What is the risk of sham surgery in Parkinson's disease clinical trials? A review of published reports.
Frank S, Kieburtz K, Holloway RG, Kim SY. Neurology 2005;65:1101-1103.

The ability of people with Alzheimer disease (AD) to make a decision about taking an AD treatment.
Karlawish JH, Casarett DJ, James BD, Xie S, Kim SY. Neurology 2005;64:1514-1519.

The dilemma of hidden ethical dilemmas.
Kim SY. Academic Psychiatry 2004;28:168-169.

Evidence-based ethics in neurology and psychiatry research.
Kim SY. NeuroRx 2004;1:372-377.

The role of the family in resolving bioethical dilemmas: Clinical insights from a family systems perspective.
Seaburn D, McDaniel S, Kim SY, Bassen D. Journal of Clinical Ethics 2004;15(2):123-124.

Proxy and surrogate consent in geriatric neuropsychiatric research: Update and recommendations.
Kim SY, Appelbaum PS, Jeste DV, Olin J. American Journal of Psychiatry 2004;161:797-806.

Potential research participants' views regarding researcher and institutional financial conflicts of interest.
Kim SY, Caine ED, Cox C, Millard RW, Nisbet P. Journal of Medical Ethics 2004;30:73-79.

Benefits and burdens of placebos in psychiatric research.
Kim SY. Psychopharmacology 2003;171:13-18.

Burdens and benefits of placebos in antidepressant clinical trials: A decision and cost-effectiveness analysis.
Kim SY, Holloway RG. American Journal of Psychiatry 2003;160:1272-1276.

Ethics and politics of research involving subjects with impaired decision-making abilities.
Kim SY, Karlawish JH. Neurology 2003;61:1645-1646.

The sham surgery debate and the moral complexity or risk-benefit analysis.
Kim SY. American Journal of Bioethics 2003;3:66-68.

Utility and limits of the mini mental state examination in evaluating consent capacity in Alzheimer's disease.
Kim SY, Caine ED. Psychiatric Services 2002;53(10):1322-4.

Utility and limits of the Mini Mental State Examination when evaluating consent capacity in Alzheimer's disease.
Kim SY, Caine ED. Psychiatric Services 2002;53:1322-1324.

Ethical issues in including suicidal individuals in clinical research.
Fisher CB, Pearson JL, Kim SY, Reynolds CF. IRB: Ethics & Human Research 2002;24:9-14.

Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research.
Kim SY, Caine ED, Cox C. American Journal of Psychiatry 2002;159(5):797-802.

Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research.
Kim SY, Caine ED, Cox C. American Journal of Psychiatry 2002;157:797-802.

Current state of research on decision-making competence of cognitively impaired elderly.
Kim SY, Caine ED, Karlawish JH. American Journal of Geriatric Psychiatry 2002;10:151-165.

Assessing the competence of persons with Alzheimer's disease in providing informed consent for participation in research.
Kim SY, Caine ED, Currier GW, Leibovici A, Ryan JM. American Journal of Psychiatry 2001;158(5):712-7.

Assessing the competence of persons with Alzheimer's disease in providing informed consent for participation in research.
Kim SY, Caine ED, Currier GW, Leibovici A, Ryan JM. American Journal of Psychiatry 2001;158:712-717.

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