Democratic Deliberation and Surrogate Consent for Dementia Research
Surrogate consent for dementia research: A national survey of older Americans
Kim SY, Kim HM, Langa K, Karlawish JH, Knopman D, Appelbaum PS. Neurology 2009;72:149-155.
Can a moral reasoning exercise improve response quality to surveys of healthcare priorities?
Johri M, Damschroder LJ, Zikmund-Fisher BJ, Kim SY, Ubel PA. Journal of Medical Ethics 2009;35(1):57-64.
Measuring numeracy without a math test: development of the subjective numeracy scale (SNS).
Fagerlin A, Zikmund-Fisher BJ, Ubel PA, Jankovic A, Derry HA, Smith DM. Medical Decision Making 2007;27(5):672-680.
Why are you calling me? How survey introductions change response patterns
Smith DM, Schwarz N, Roberts TR, Ubel PA. Quality of Life Research 2006;15:621-630.
In a mailed physician survey, questionnaire length had a threshold effect on response rate.
Jepson C, Ubel PA, Hershey JC, Asch DA. Journal of Clinical Epidemiology 2005;58:103-5.
Reflections from the population: survey methods.
Fagerlin A, McMahon LF. Journal of Clinical Gastroenterology 2004;38:307-308.
The DECISIONS Study in the news
October 17, 2010
Q&A;: University of Michigan study looks into medical research consent
February 07, 2009
"Decide for Me When I Can't," Most People Say
Health Day -
January 21, 2009
Most People Support Alzheimer's Research Based on Family Consent
January 14, 2009