Research associated with Impaired decision making


Democratic Deliberation and Surrogate Consent for Dementia Research

Capacity to Appoint a Proxy for Research Consent


Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research
De Vries R, Stanczyk A, Wall IF, Uhlmann RA, Damschroder L, Kim SY. Social Science and Medicine 2010.

Surrogate consent for dementia research: A national survey of older Americans
Kim SY, Kim HM, Langa K, Karlawish JH, Knopman D, Appelbaum PS. Neurology 2009;72:149-155.

Determining when impairment constitutes incapacity for informed consent in schizophrenia research.
Kim SY, Leibovici A, Lamberti JS, Jeste DV, Goff DC, McEvoy JP, Stroup S, Swan JG, Appelbaum PS, Caine ED. British Journal of Psychiatry 2007;191:38-43.

The capacity to appoint a proxy and the possibility of concurrent proxy directives.
Kim SY, Appelbaum PS. Behavioral Sciences and the Law 2006;24:469-478.

Do clinicians follow a risk-sensitive model of capacity determination? An experimental video survey.
Kim SY, Caine ED, Swan JG, Appelbaum PS. Psychosomatics 2006;47:325-329.

Competency for creation, use, and revocation of psychiatric advance directives.
Srebnik DS, Kim SY. Journal of the American Academy of Psychiatry Law 2006;34:501-510.

Appointing a proxy for research consent after one develops dementia: The need for further study.
Kim SY, Kieburtz K. Neurology 2006;66:1298-1299.

Decision-making capacity for research participation among individuals in the CATIE schizophrenia trial.
Stroup S, Manschreck T, Keefe R, Kim SY, Jeste DV, Davis S, Patel M, Swartz M, Appelbaum PS, McEvoy JP, Lieberman J. Schizophrenia Research 2005;80:1-8.

When does decisional impairment become decisional incompetence? Ethical and methodologial issues in capacity research in schizophrenia.
Kim SY. Schizophrenia Bulletin 2005;32:92-97.

Ethics and politics of research involving subjects with impaired decision-making abilities.
Kim SY, Karlawish JH. Neurology 2003;61:1645-1646.

Utility and limits of the Mini Mental State Examination when evaluating consent capacity in Alzheimer's disease.
Kim SY, Caine ED. Psychiatric Services 2002;53:1322-1324.

Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research.
Kim SY, Caine ED, Cox C. American Journal of Psychiatry 2002;157:797-802.

Current state of research on decision-making competence of cognitively impaired elderly.
Kim SY, Caine ED, Karlawish JH. American Journal of Geriatric Psychiatry 2002;10:151-165.

Press Coverage:

Q&A;: University of Michigan study looks into medical research consent
February 07, 2009

"Decide for Me When I Can't," Most People Say
Health Day - January 21, 2009

Most People Support Alzheimer's Research Based on Family Consent
January 14, 2009