Research associated with Bioethics


Democratic Deliberation and Surrogate Consent for Dementia Research

Capacity to Appoint a Proxy for Research Consent


Commentary: Genetic testing and youth sports
Tarini B, Brooks MA. JAMA 2011;305(10):1033-4.

A framework for assessing the quality of democratic deliberation: Enhancing deliberation as a tool for bioethics
De Vries R, Stanczyk A, Ryan K, Kim SY. Journal of Empirical Research on Human Research Ethics 2011.

Commentary: Conjectural mixed motives
Walter J, Goold SD. Hastings Center Report 2011;Jan-Feb:11-12.

Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research
De Vries R, Stanczyk A, Wall IF, Uhlmann RA, Damschroder L, Kim SY. Social Science and Medicine 2010.


Assessing the public's views in research ethics controversies: Deliberative democracy and bioethics as natural allies
Kim SY, Wall IF, Stanczyk A, De Vries R. Journal of Empirical Research on Human Research Ethics 2009;4:3-16.

Surrogate consent for dementia research: A national survey of older Americans
Kim SY, Kim HM, Langa K, Karlawish JH, Knopman D, Appelbaum PS. Neurology 2009;72:149-155.

Can a moral reasoning exercise improve response quality to surveys of healthcare priorities?
Johri M, Damschroder LJ, Zikmund-Fisher BJ, Kim SY, Ubel PA. Journal of Medical Ethics 2009;35(1):57-64.

Beyond utilitarianism: A method for analyzing competing ethical principles in a decision analysis of liver transplantation.
Volk M, Lok AS, Ubel PA, Vijan S. Medical Decision Making 2008;28(5):763-772.

The potential impact of decision role and patient age on end-of-life treatment decision making.
Zikmund-Fisher BJ, Lacey HP, Fagerlin A. Journal of Medical Ethics 2008;34(5):327-31.

Ethics of sham surgery: Perspective of patients.
Frank S, Wilson R, Holloway RG, Zimmerman C, Peterson DR, Kieburtz K, Kim SY. Movement Disorders 2008;23:63-8.

Conflicts of interest and the physician-patient relationship in the era of direct-to-patient advertising.
Jagsi R. Journal of Clinical Oncology 2007;25:902-905.

Assessing and communicating risks and benefits of gene transfer clinical studies.
Kim SY. Current Opinion in Molecular Therapeutics 2006;8:384-389.

The capacity to appoint a proxy and the possibility of concurrent proxy directives.
Kim SY, Appelbaum PS. Behavioral Sciences and the Law 2006;24:469-478.

Do clinicians follow a risk-sensitive model of capacity determination? An experimental video survey.
Kim SY, Caine ED, Swan JG, Appelbaum PS. Psychosomatics 2006;47:325-329.

Who decides? Living donor liver transplantation for advanced hepatocellular carcinoma.
Volk M, Marrero JA, Lok AS, Ubel PA. Transplantation 2006;82(9):1136-1139.

Context changes choices: A prospective study of the effects of hospitalization on life-sustaining treatment preferences
Ditto PH, Danks JH, Smucker WD, Jacobson JA, Fagerlin A. Medical Decision Making 2006;26:313-322.

Volunteering for early phase gene transfer research in Parkinson's disease.
Kim SY, Holloway RG, Frank S, Beck CA, Zimmerman C, Wilson R, Kieburtz K. Neurology 2006;66:1010-1015.

Competency for creation, use, and revocation of psychiatric advance directives.
Srebnik DS, Kim SY. Journal of the American Academy of Psychiatry Law 2006;34:501-510.

What do people at risk for Alzheimer's disease think about surrogate consent for research?
Kim SY, Kim HM, McCallum C, Tariot PN. Neurology 2005;65:1395-1401.

Is psychiatric research stigmatized? An experimental survey of the public.
Kim SY, Muroff JR, Hoerauf SL. Schizophrenia Bulletin 2005;32:129-136.

When does decisional impairment become decisional incompetence? Ethical and methodologial issues in capacity research in schizophrenia.
Kim SY. Schizophrenia Bulletin 2005;32:92-97.

Science and ethics of sham surgery: A survey of Parkinson disease clinical researchers.
Kim SY, Frank S, Holloway RG, Zimmerman C, Wilson R, Kieburtz K. Archives of Neurology 2005;62:1357-1360.

What is the risk of sham surgery in Parkinson's disease clinical trials? A review of published reports.
Frank S, Kieburtz K, Holloway RG, Kim SY. Neurology 2005;65:1101-1103.

The ability of people with Alzheimer disease (AD) to make a decision about taking an AD treatment.
Karlawish JH, Casarett DJ, James BD, Xie S, Kim SY. Neurology 2005;64:1514-1519.

The dilemma of hidden ethical dilemmas.
Kim SY. Academic Psychiatry 2004;28:168-169.

The ethics of medical education.
Jagsi R, Lehmann LS. British Medical Journal 2004;329:332-334.

Evidence-based ethics in neurology and psychiatry research.
Kim SY. NeuroRx 2004;1:372-377.

Enough: The failure of the living will.
Fagerlin A, Schneider CE. Hastings Center Report 2004;34:30-42.

Potential research participants' views regarding researcher and institutional financial conflicts of interest.
Kim SY, Caine ED, Cox C, Millard RW, Nisbet P. Journal of Medical Ethics 2004;30:73-79.

Benefits and burdens of placebos in psychiatric research.
Kim SY. Psychopharmacology 2003;171:13-18.

Burdens and benefits of placebos in antidepressant clinical trials: A decision and cost-effectiveness analysis.
Kim SY, Holloway RG. American Journal of Psychiatry 2003;160:1272-1276.

Don't ask, don't tell: a change in medical student attitudes after obstetrics/gynecology clerkships toward seeking consent for pelvic examinations on an anesthetized patient.
Ubel PA, Jepson C, Silver-Isenstadt A. American Journal of Obstetrics and Gynecology 2003;188:575-579.

The sham surgery debate and the moral complexity or risk-benefit analysis.
Kim SY. American Journal of Bioethics 2003;3:66-68.

Physicians' willingness to participate in the process of lethal injection for capital punishment?
Farber NJ, Aboff BM, Weiner J, Davis EB, Boyer EG, Ubel PA. Annals of Internal Medicine 2001;135:884-888.

Spiritual values in the setting of health care priorities.
Ubel PA, Coyle BR. Kennedy Institute of Ethics Journal 2001;10:107-108.

Press Coverage:

Jagsi Study on Conflicts of Interest
May 20, 2009

Q&A;: University of Michigan study looks into medical research consent
February 07, 2009

"Decide for Me When I Can't," Most People Say
Health Day - January 21, 2009

Most People Support Alzheimer's Research Based on Family Consent
January 14, 2009

In Medicine, Acceptable Risk Is in the Eye of the Beholder
NY Times - June 20, 2006

Would You Take a Risky Flu Vaccine?
WebMD - May 31, 2006

We're stronger than we think
Saskatoon StarPhoenix - May 27, 2006

Facing mortality
Pittsburgh Tribune-Review - April 30, 2006

Survey looks at ethics of Alzheimer's trials
November 08, 2005

Is it okay to sign Alzheimer's patients up for research studies?
November 07, 2005

Most at risk of Alzheimer's would join research trial
November 07, 2005