Research associated with Research ethics


Democratic Deliberation and Surrogate Consent for Dementia Research

Capacity to Appoint a Proxy for Research Consent


Preservation of the capacity to appoint a proxy decision maker: Implications for dementia research
Kim SY, Karlawish JH, Kim HM, Wall IF, Bozoki AC, Appelbaum PS. Archives of General Psychiatry 2011;68:214-219.

Assessing the quality of democratic deliberation: A case study of public deliberation on the ethics of surrogate consent for research
De Vries R, Stanczyk A, Wall IF, Uhlmann RA, Damschroder L, Kim SY. Social Science and Medicine 2010.


Assessing the public's views in research ethics controversies: Deliberative democracy and bioethics as natural allies
Kim SY, Wall IF, Stanczyk A, De Vries R. Journal of Empirical Research on Human Research Ethics 2009;4:3-16.

Pruning the regulatory tree
Kim SY, Ubel PA, De Vries R. Nature 2009;457:534-535.

Surrogate consent for dementia research: A national survey of older Americans
Kim SY, Kim HM, Langa K, Karlawish JH, Knopman D, Appelbaum PS. Neurology 2009;72:149-155.

Ethics of sham surgery: Perspective of patients.
Frank S, Wilson R, Holloway RG, Zimmerman C, Peterson DR, Kieburtz K, Kim SY. Movement Disorders 2008;23:63-8.

Determining when impairment constitutes incapacity for informed consent in schizophrenia research.
Kim SY, Leibovici A, Lamberti JS, Jeste DV, Goff DC, McEvoy JP, Stroup S, Swan JG, Appelbaum PS, Caine ED. British Journal of Psychiatry 2007;191:38-43.

The capacity to appoint a proxy and the possibility of concurrent proxy directives.
Kim SY, Appelbaum PS. Behavioral Sciences and the Law 2006;24:469-478.

Volunteering for early phase gene transfer research in Parkinson's disease.
Kim SY, Holloway RG, Frank S, Beck CA, Zimmerman C, Wilson R, Kieburtz K. Neurology 2006;66:1010-1015.

Appointing a proxy for research consent after one develops dementia: The need for further study.
Kim SY, Kieburtz K. Neurology 2006;66:1298-1299.

Decision-making capacity for research participation among individuals in the CATIE schizophrenia trial.
Stroup S, Manschreck T, Keefe R, Kim SY, Jeste DV, Davis S, Patel M, Swartz M, Appelbaum PS, McEvoy JP, Lieberman J. Schizophrenia Research 2005;80:1-8.

What do people at risk for Alzheimer's disease think about surrogate consent for research?
Kim SY, Kim HM, McCallum C, Tariot PN. Neurology 2005;65:1395-1401.

Is psychiatric research stigmatized? An experimental survey of the public.
Kim SY, Muroff JR, Hoerauf SL. Schizophrenia Bulletin 2005;32:129-136.

When does decisional impairment become decisional incompetence? Ethical and methodologial issues in capacity research in schizophrenia.
Kim SY. Schizophrenia Bulletin 2005;32:92-97.

Science and ethics of sham surgery: A survey of Parkinson disease clinical researchers.
Kim SY, Frank S, Holloway RG, Zimmerman C, Wilson R, Kieburtz K. Archives of Neurology 2005;62:1357-1360.

What is the risk of sham surgery in Parkinson's disease clinical trials? A review of published reports.
Frank S, Kieburtz K, Holloway RG, Kim SY. Neurology 2005;65:1101-1103.

The ability of people with Alzheimer disease (AD) to make a decision about taking an AD treatment.
Karlawish JH, Casarett DJ, James BD, Xie S, Kim SY. Neurology 2005;64:1514-1519.

Evidence-based ethics in neurology and psychiatry research.
Kim SY. NeuroRx 2004;1:372-377.

Proxy and surrogate consent in geriatric neuropsychiatric research: Update and recommendations.
Kim SY, Appelbaum PS, Jeste DV, Olin J. American Journal of Psychiatry 2004;161:797-806.

Potential research participants' views regarding researcher and institutional financial conflicts of interest.
Kim SY, Caine ED, Cox C, Millard RW, Nisbet P. Journal of Medical Ethics 2004;30:73-79.

Benefits and burdens of placebos in psychiatric research.
Kim SY. Psychopharmacology 2003;171:13-18.

The sham surgery debate and the moral complexity or risk-benefit analysis.
Kim SY. American Journal of Bioethics 2003;3:66-68.

Ethics and politics of research involving subjects with impaired decision-making abilities.
Kim SY, Karlawish JH. Neurology 2003;61:1645-1646.

Ethical issues in including suicidal individuals in clinical research.
Fisher CB, Pearson JL, Kim SY, Reynolds CF. IRB: Ethics & Human Research 2002;24:9-14.

Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research.
Kim SY, Caine ED, Cox C. American Journal of Psychiatry 2002;157:797-802.

Who will enroll? Predicting participation in a phase II AIDS vaccine trial.
Halpern SD, Metzger DS, Berlin JA, Ubel PA. Journal of Acquired Immune Deficiency Syndromes 2001;27:281-288.

Assessing the competence of persons with Alzheimer's disease in providing informed consent for participation in research.
Kim SY, Caine ED, Currier GW, Leibovici A, Ryan JM. American Journal of Psychiatry 2001;158:712-717.

Press Coverage:

Q&A;: University of Michigan study looks into medical research consent
February 07, 2009

"Decide for Me When I Can't," Most People Say
Health Day - January 21, 2009

Most People Support Alzheimer's Research Based on Family Consent
January 14, 2009